Jul 302006

In the great hard drive /server crash of 2006, we lost of lot of data.

But thanks to the magic of Google’s cache, I managed to fish the missing posts out of the aether, and re-post ‘em for Spike. The comment format is a bit wonky on the retrieved posts, but everything should be here.


 Posted by at 4:17 am
Jul 302006

Hi, this is Elaine posting.

The most recent server crash last week hosed the list entirely (and the backups went down the chute as well), so if you were once on the announce-only list for Spike saying she’s updated this blog, you gotta subscribe again. Geekily sorry.

ps: I’ve moved from the old hosting company to an entirely different one.


 Posted by at 3:52 am
Mar 022006

The beginnings of some cheery news on the vaccine front….

Immune cells taken from healthy volunteers were five times as likely to recognise dead ovarian cancer cells that had been killed with bleach, compared with cells that had been killed by heat or acid.



 Posted by at 12:59 pm
Aug 132005

So we did the Trip of Fear to the Cancer Agency to get Spike’s quarterly test results. I thought I did well as we went into the building, because my teeth were barely chattering and I did not vomit on the floor. Spike was brave, but then, she’s just like that.

She passed with flying colours. No signs of cancer, happy bloodwork. Yes, yes. Go home, have a life. See you in three months.

And I look around at my life, and my love, and think about what a lucky grrl I am.


 Posted by at 5:40 pm
May 222005

Spike and I went to the cancer agency a few days ago to get her quarterly blood test results. The doctor cheerfully said to Spike that she was (and I quote) disgustingly healthy. Yes! Woo hoo! We love hearing superlatives attached to the word “healthy”.

Here’s the thing I wanna share, though…

Funny thing. The chemotherapy side-effects look like the disease itself. So when a cancer patient finishes the chemo that’s 3/4 killing them in hopes of all-the-way killing the cancer cells, and they start looking more like a regular human again, and being able to walk around the block without pausing to rest six times… well, it just seems like they’re better. Folks congratulate them on beating cancer.

Except… cancer is the monster that waits around the corner. Surgery carves out all the cancer that can be seen and reached. Chemo tries to kill any remaining cells. Then the patient is discharged, and… and… waits seven goddamn years for a clean bill of health — waits to find out if the radical surgery and the shocking illness caused by chemo did the job. The intervening time is spent (1) enjoying the heck out of life and (2) if one values ones sanity, not thinking too much about the monster that may be laying in wait.

Here’s more info on recurrence: Dancing with NED

I restrain myself from peering fearfully around corners. But still…

Here’s the problem:

Both Spike and I do well in adverse situations if there’s something to be done about them.

“In order to survive this, I gotta move this mountain from this place to that place? Okay, lemme get my shovel.”

So the whole freakish last year has been a lot of work (each of us with different things to do), and lot of enduring the shitty stuff, and a lot of planning and changing our diet to eliminate chemicals and hormones and additives and such… and even cleaning the doorknobs when Spike’s immune system was down, and, well, there was always so much to do. And with a great deal of help from our friends, we did it.

And here we are, on the other side of the treatment, with nuthin’ to complain about… and now I’m more frightened than I have words to express.

I wouldn’t want to experience my life without Spike in it. She’s wise and warm and brave and funny and she matches me like no other. Her kindness inspires me. Her insight makes me think. I love her because of who she is in the world, and you should too. I will marry her, and in doing so will become the luckiest person alive.
On a visceral level, if I imagine a time when I can’t roll over in the morning and see her smiling at me from the next pillow over, I feel like curling up in a ball and crying. If I imagine a time when I can’t turn excitedly to her and share some new knowledge, or talk over a trouble… the pang of loss — just from imagination — feels like a stab wound. And when I consider the possibility of a recurrence of her cancer taking her from me… I experience terrible feelings of fear and helplessness.

Because, you see, we can’t just plunge in and apply hard work to make the best outcome. We did that part, and we continue to do healthy lifestyle kinda stuff, and besides that we don’t really have any control left, besides avoid-high-tension-power-lines and don’t-get-a-coal-burning-chimney. Our future together is dictated by a toss of the cellular dice, tossed by a universe indifferent to personal loss. And every three months, we go see a doctor, who matter-of-factly reports on the results of the toss.

So for those of you who wonder why I spend a week out of every three months walking around with my teeth chattering — now you know. But I guess it’s the only game in town.

 Posted by at 5:21 pm
Mar 042005

For those who wanna see the gallery where Spike and friends use razors and clippers to remove the fuzz atop their heads, you now have to log in. Approximately a zillion excited gay men found the site and began fetishing it and we just can’t keep up with the bandwidth. It’s not *very* hidden, though. Anyone who can read this post can get in.

login link is at upper right on this page:


Username… friend
password… friend

How low-security can you get?

 Posted by at 7:56 pm
Jan 032005

I’m thankful too. We’ve made it through this last year with a huge amount of love and support and help from close friends and total strangers. I’m thankful all the time. But here’s something weird that I figure you only get to know if you’ve been thankful a lot in your life…

I’m kinda sick of being thankful-needful. I’m not at all sick of the wonderful people who are so damn nice to us; I’m sick of being on the “needing the help” end of the thankfulness. I’d rather, when it comes down to it, be on the “giving” end instead of the “receiving” end.

So… I can’t wait for our little boat of life to find calmer waters so we can begin the process of giving some reasons for thankfulness back. It’s close. I can feel it.

On the up side (another up side), it’s fun watching Spike’s eyebrows grow back in. We both missed them!


 Posted by at 3:49 pm